Skip to main content

Two Steps Forward, One Step Back


Once again, I apologize for my absence. The irony here is that I’m not feeling up to managing my blog for those with chronic illness… because I’m too busy struggling with my own chronic illness.

The latest update in this saga is a doozy. Yesterday I got hives on my hands. This morning my mom emailed two of my doctors and both of them said to go off of the medication I’ve been on for the past three weeks because they think I’m having an allergic reaction. This medication was supposed to help with my nerve pain, but all it’s done is made things ten times worse.

We’re not quite sure if I am indeed allergic to this, but time will tell. Until then, I’m dealing with even more agony than I thought I could withstand. It’s funny. I keep thinking things can’t get worse, and then they do. I keep wishing I could go back to the way I was back before this yeast overgrowth started, when I dealt with only fibro. Yes, it was pain. Yes, I hated it. But it was ten times better than what I’m going through now.

The symptoms started surfacing about a week or two ago. I started having intense burning sensations, as if my skin was on fire from the inside. It was… to put it bluntly, as close to hell as I’ve ever come. It’s been miserable. As I’ve mentioned, I’ve been dealing with what we think is a yeast overgrowth, so we thought the burning sensation was related to that since I’ve already been itching for the past two months. But then yesterday the hives showed up, like tiny little blisters scattered all across my hands. And we knew something wasn’t right.

In addition to that, the rest of my skin has been breaking out progressively over the past few weeks. When I had my friend out here visiting, my skin seemed like was starting to heal, but since then, more hives have popped up all over my body. I’m constantly accidentally scratching off the scabs and simply put, I look like a mess.

I am going to be very, very blunt. I’m pretty sure this is one of the worst things I’ve ever experienced—both the supposed medication allergy and the yeast overgrowth. I once again feel like I’m taking two steps forward, one step back. And just so you know, I’m completely convinced that everyone in hell has yeast overgrowths.

So now the plan is to gradually decrease the medication. Apparently this medication is an anti-seizure medication so they’re concerned that if I cut it out cold-turkey, I may have a seizure.

Great. And I was putting this stuff into my body?

Every pill I take of this, I feel like I’m just adding more poison to what is already a dire situation. I literally am so overwhelmed by my physical state. I feel like it’s consumed me to the point where I’ve had trouble focusing on anything else.

In the meantime, I’m going to try to take an oatmeal bath and try to hang in there until this medication and the yeast both get the heck out of my system. Whenever that is.

Comments

  1. "It's just like dancing; two steps forward, one step back"

    It's just like dancing, Sky. You just have to find your tempo. Hang in there dearie...hang in there. I'm praying for you.

    ReplyDelete
  2. I feel your pain! Keep hanging in there. YOU ARE SO LOVED. <3 <3

    ReplyDelete
  3. Oh, my ... I'm so sorry to hear this. No one should have to go through it, but I feel like you being a teenager seems doubly "unfair."

    You may already have seen it, but I wrote a blog on trials for a site called Blogos.org: http://www.blogos.org/christianlifeandgrowth/god-in-hard-times.php

    While trusting God doesn't always take the pain away, just know that He has a reason for this ... and His reasons are always bigger than we can imagine.

    ReplyDelete

Post a Comment

Popular posts from this blog

Where Have I Been?

(I try to be serious, but I just fail.) The awkward thing about being a spoonie who is running a blog for fellow spoonies is that sometimes I fall prey to being a spoonie. Which is to say that the reason I haven't been blogging here is because a lot of things happened, including not feeling well. (Ironic.) Though I seem to be in a good patch with my fibro, my health isn't perfect (OBVIOUSLY since I run this blog). Thus, I've been having some down days where I have a headache or brain fog or overall body pain. Now, there have been a lot of days where I feel okay. The only thing is, I don't have as many spoons as I would like. And between running a website and helping babysit, I've been a bit low on spoons. Unfortunately, that means a lot of my more personal projects have fallen by the wayside. (Don't feel too bad; even my novels, which are my life-blood, have been neglected too.) I guess the point of this post is to say, I'm low on spoons right now... and I...

Spoonie Fashion or the Lack Thereof: 4 Reasons Why We May Be Wearing Sweatpants

(To be honest, I want to be this pug.) I've always been a casual, jeans-and-t-shirt kind of gal, but in the past four years, my fashion style has become based solely around what I'm most comfortable wearing. Sometimes that makes me feel insecure about myself, and I know a lot of spoonies might feel the same way. It took me forever to realize that I'm not a terrible person because of this--I just have a chronic illness. So, if you also wear sweatpants, this post is for you. Also, if you happen to see me, and I happen to be wearing sweatpants, here is why. 1. Comfort The number one reason is comfort. I have headaches, overall body pain, and fatigue on a regular basis. For me, I've chosen to prioritize my comfort above all else. Jeans can be constricting and uncomfortable, so I mostly wear cotton tees, hoodies, or flannels with yoga pants, cotton shorts, or sweatpants. I often need to lay down on my bad days, so wearing comfy things helps me be able to do that easily. When...

In Which We Must Switch to Bloglovin

Hey all! See that little "followers" widget on the sidebar? Unfortunately, it won't be there for much longer. Its formal name is Google Friend Connect, and it's being retired by Google on July 1st, which means you won't be able to use it to get updates from me anymore. In order to keep up with Spill the Beans posts, would you do me a favor and follow this blog on Bloglovin? Bloglovin is a great alternative to Google Friend Connect and when I signed up yesterday it was virtually painless. (No pun intended!) If you'd rather, you can also subscribe by email in the sidebar as well, or use another blog reader platform of your choice. I look forward to continuing this blog and having you alongside me on the way! Follow my blog with Bloglovin